Engaging the UN System and Member States to Achieve Universal Health Coverage for Persons Living with a Rare Disease: A Blueprint for Leaving No One Behind
Details
- September 21, 2023
-
1:15 pm - 2:30 pm EDT
- Cost:
- Free
- Issues:
- GovernmentHealthSDGsSustainable Development
This event is the continuation of years-long advocacy by RDI and its partners. Since the Political Declaration on UHC in 2019, in which rare diseases are specifically mentioned, and the milestone UN Resolution on “Addressing the challenges of persons living with a rare disease and their families”, RDI has solidified the key tenets of UHC for Rare Diseases through regional consultations. By looking at the three pillars of UHC in general, namely population, services, and financial protection, and applying them to rare diseases in particular, this event will solidify the next steps in implementing UHC for Rare Diseases.
Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind will feature expert speakers, panellists, and an audience formed of civil society, academia, research and health institutions, government ministries, regional and international organizations, and the private sector.
The speakers and panellists will, moreover, highlight the specific needs of the global community of PLWRD, address the burden unpaid caregivers (who are most often women) currently bear, and explore methods to reduce the out-of-pocket expenses (OOPs) shouldered by PLWRD and their families. These themes are in line with the World Health Organization’s Thirteenth General Programme of Work and its first Triple Billion Target, and RDI’s four-year long successful collaboration with the WHO under a Memorandum of Understanding. Furthermore, in this way, an intersectional approach which addresses several Sustainable Development Goals (SDGs) – with a focus on SDG 5, Gender equality – will advance the push towards achieving UHC for PLWRD by 2030, as stipulated in the 2030 Agenda.
Location of the event
This event is the continuation of years-long advocacy by RDI and its partners. Since the Political Declaration on UHC in 2019, in which rare diseases are specifically mentioned, and the milestone UN Resolution on “Addressing the challenges of persons living with a rare disease and their families”, RDI has solidified the key tenets of UHC for Rare Diseases through regional consultations. By looking at the three pillars of UHC in general, namely population, services, and financial protection, and applying them to rare diseases in particular, this event will solidify the next steps in implementing UHC for Rare Diseases.
Engaging the UN System and Member States to Achieve UHC for PLWRD: A Blueprint for Leaving No One Behind will feature expert speakers, panellists, and an audience formed of civil society, academia, research and health institutions, government ministries, regional and international organizations, and the private sector.
The speakers and panellists will, moreover, highlight the specific needs of the global community of PLWRD, address the burden unpaid caregivers (who are most often women) currently bear, and explore methods to reduce the out-of-pocket expenses (OOPs) shouldered by PLWRD and their families. These themes are in line with the World Health Organization’s Thirteenth General Programme of Work and its first Triple Billion Target, and RDI’s four-year long successful collaboration with the WHO under a Memorandum of Understanding. Furthermore, in this way, an intersectional approach which addresses several Sustainable Development Goals (SDGs) – with a focus on SDG 5, Gender equality – will advance the push towards achieving UHC for PLWRD by 2030, as stipulated in the 2030 Agenda.